Adenoid Cystic Carcinoma Foundation Resource Center



They tried to tell me that I was alone.
Now, we have each other.
Nancy Whitman


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NORD. The National Organization for Rare Disorders, a 501(c)3 Non Profit, has put in place a way that interested parties can contribute directly to a research fund for a specific disease. Many of us have found ourselves frustrated by the lack of knowledge of ACC. It is now possible to change that. Working through an organization such as NORD, we can direct our contributions to the organization that will see it goes to help ACC directly.! They also maintain a confidential networking program. For more information go to the NORD Website, send e-mail to NORD, or telephone Toll-Free: (800) 999-6673.

Use this as a way to honor your friends and family. The contributions should be made to the ACC Research fund at NORD. They are tax deductible and will be acknowledged. The fund will be announced in their summer newsletter. The sum of $35,000 must be reached before a grant will be considered.

Employer matching gifts and payroll deduction is available in many companies. Check with your Human Resources department. Make sure that you mention The Adenoid Cystic Carcinoma Research Fund and The General Heiberg Matching Gift Challenge.


WHAT IS SUMMER ODYSSEY 2001?



Please remember our Bookshop! Books, music, and video titles ordered there also generate contributions to ACC Fund at NORD!

Join the caring, sharing members of the Adenoid Cystic Carcinomas Electronic Support Group, ADEN-CYST, at ACOR (Association of Cancer Online Resources).

Also available at ACOR is ADCC-MED which is dedicated to AdCC treatment and medication.

Update - 6 August 2000

Another mail-list option would be The Adenoid Cystic Carcinoma Organization



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The content of this web site is provided for information and support only and is in no way intended to replace the advice of a qualified Medical practitioner. The maintainers of this site accept no responsibility for any Medical advice, or treatment regime mentioned. It is the responsibility of the person viewing this material to seek qualified Medical advice on all matters relating to the treatment and management of any ailment mentioned. The Authors intellectual copyright of quoted material, is acknowledged, and their consent should be obtained before further publication.

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Last updated 10 June 2001


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